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Granddaughter of Parseghian dies

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  • Granddaughter of Parseghian dies

    --Boundary_(ID_CIwGxm6EV4ZCa0xfOKUyzw)
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    From: Mihran Toumajan <[email protected]>
    Subject: Granddaughter of Parseghian dies
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    Granddaughter of Parseghian dies

    Sixteen-year-old was victim of Niemann-Pick disease

    Associated Press
    Monday, August 8, 2005

    TUCSON, Ariz. (AP) -- The granddaughter of former Notre Dame football
    coach Ara Parseghian, whose family raised millions of dollars to pay for
    research on Niemann-Pick disease, has died of the rare genetic disorder.

    Sixteen-year-old Marcia Parseghian died early Saturday. She was the
    longest surviving of three siblings all diagnosed with the rare and
    fatal disease.

    Niemann-Pick Type C affects about 500 children worldwide, and killed her
    brother Michael in 1997 and sister Christa in 2001. Her older brother,
    Ara, did not inherit the disease.

    Marcia Parseghian's parents, Mike and Cindy Parseghian, learned in
    October 1994 that three of their four children had the disease, and they
    quickly established the Ara Parseghian Medical Research Foundation to
    raise money for research on Niemann-Pick Type C.

    In 10 years, the foundation raised more than $22 million, with 95
    percent of it going to fund research.

    NP-C bears a resemblance to Alzheimer's disease, and because it stems
    from an inability to metabolize cholesterol, researchers hope work on
    NP-C will help those at risk for cardiovascular disease, heart attack
    and stroke.


    http://sportsillustrated.cnn.com/2005/football/ncaa/specials/preview/2005/08/08/ara.daughter.ap/index.html

    --Boundary_(ID_CIwGxm6EV4ZCa0xfOKUyzw)--
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